Eniten ahdistaa kaikki / Frustration and anger
L eilen +3. Kolme peräkkäistä +3 on siis taas relapsi. Olo oli kun joku olisi potkaissut vatsaan, ahdisti eikä saanut kunnolla henkeä. Sain syötyä vasta illalla. Tytölle ei kerrottu mitään. Tänään aamutestin tulos oli +2. Halleluja, jipii ja jee! Toivoa on aloittaa kunnon sota relapsia vastaan.
Tyttö jää kotiin koulusta, äiti käärii pumpuliin ja syöttää tänään mm. sitruunaa, pakurikääpää, kurkumaa juureskeitossa, Regulattia, lehtikaalia, luomumunia kylmäpuristetussa luomu-seesamöljyssä kokkeluituna, nokkospiikalkkia, d-vitamiinia ja maitohappobakteereja. Ja niitä steroideja tänään 15mg. Hyvän mielen kohottajaksi ja stressin poistoon uusi Monster High lelu ja vähän Rescue Remedy suihketta.
En todellakaan ole seonnut, enkä usko, että näistä mikään poistaa tai parantaa tautia. Mutta olen valmis kokeilemaan ihan kaikkea. Niin sinäkin olisit, jos lapsesi olisi sairas, joten älä tuomitse. Vertauksen vuoksi kerron, että Jenkkivanhemmat ovat vieneet NS-lapsensa manaajalle. Kyllä, eksorsimia. Siihen verrattuna mun pakurikäävät kalpenee. Kuten yksi äiti vertaisryhmässä sanoi, jos hän uskoisi, että seisominen hyytelö-ämpärissä auttaisi, hän laittaisi lapsensa ämpäriin. Niin minäkin!
Olen saanut hurjan määrän vinkkejä munuaisten terveyden ylläpitoon, vastustuskyvyn ylläpitämiseen streroidien tuhotessa sen, munuaisille suosiollisista ruuista ja muista luonnollisista aineista, joista EHKÄ olisi apua.
Uskon, että voin niiden avulla parantaa tytön vastustuskykyä, ettei joka yskähdys johda relapsiin. Uskon, että terveellinen ruokavalio, vitamiinit ja muut luonnolliset terveystuotteet edistävät hyvinvointia. Uskon, että tytön keho on kärsinyt kovasti vahvoista lääkkeistä, joihin hän ei ole yhtään tottunut, ja keho tarvitsee apua taistellessaan lääkkeiden aiheuttamia sivuvaikutuksia vastaan.
Olen illat istunut koneen äärellä tutkien näitä eri vinkkejä, etten osta turhia tai liikaa, mutta nyt relapsi-vaaran takia syöksyin luontaistuotekauppaan. Onneksi työvuorossa oli fytonomi ja sain häneltä lisää tietoa, eri mielipiteitä ja suosituksia. Näistä kaikista haluan tehdä oman postauksen linkkeineen, mutta siihen minulla ei ole juuri nyt aikaa.
Nyt pitää vähän raivota.
L:n lääkäri soitti, kun eilen ilmoitin sairaalaan plussa-tuloksesta. Kerroin, että tänään oli vain +2 ja että pidän tytön kotona ja syötän vain terveellistä ruokaa. Ei voi olla samantekevää syökö lapsi pizzaa ja kokista vai luomujuureksia. Käytiin keskustelua ruokavaliosta, taas kerroin että jenkkilääkärit neuvovat vähäsuolaiseen ja gluteiinittomaan ja itse pidän myös maidottomalla sen tutkimuksen vuoksi, jossa todettiin, että maidoton ruokavalio vähentää relapsien määrää.
Meidän lääkärin mukaan ruokavaliolla EI OLE MITÄÄN MERKITYSTÄ.
Syvä huokaus, hengähdys ja tauko tähän väliin.
Ihan totta? Haluaisin tietää mitä lääkäri itse syöttäisi lapselleen jos tämä olisi sairas. Olen kyllä ollut muilla LÄÄKÄREILLÄ, jotka suureen ääneen puhuvat terveellisen ruokavalion merkityksestä ihmisen hyvinvoinnille. Netistä löytyy varmaan miljoonia LÄÄKÄREIDEN kirjoittamia artikkeleita ruokavalion tärkeydestä.
Lukuisat tutkimukset todistavat, että ruokavaliolla ollaan saatu monia sairauksia kuriin. NS-potilaiden vanhemmat ovat todennneet ruokavalion merkityksen. Haluaisin tietää miten lääkäri perustelee väitettään, mutta on muutakin tekemistä kuin hakata päätä seinään.
Vaikka tämä lääkäri olisi niin käsittämättömän tyhmä, että todella uskoisi ruokavalion olevan yhdentekevää, olisiko hän edes voinut empaattisuuttaan sanoa, että "Onpa hienoa että jaksat tehdä terveellistä ruokaa lapsellesi." Tai että "Hienoa, kannattaa tietenkin yrittää kaikkea mahdollista." Tai että "Sinulle tulee varmaan hyvä olo siitä, että voit omalta osaltasi tehdä jotain sairauden torjumisen eteen."
Mutta hänen mielestään riittää, että syötän tyttärelleni pillereitä. Pillereitä, jotka EIVÄT TOIMI! Pillereitä, joista tulee hurjia sivuoireita.....joihin sitten kyllä löytyy taas uusia lääkkeitä.
On hyvin vaikea kunnioittaa lääkäriä, joka ei ymmärrä että terveys koostuu monista eri palasista. Henkinen hyvinvointi ja ravinto ovat suuria palasia palapelissä. Jos tämä taistelu kaikesta huolimatta päättyy relapsiin, haluan vaihtaa lääkäriä. Piste.
Terveys voidaan määritellä negatiivisesti ruumiillisten ja henkisten sairauksien poissaolona tai positiivisesti hyvänä ruumiin ja hengen tilana, jota kuvaa parhaiten sana hyvinvointi. Terveys on kuitenkin laaja käsite, jonka määritelmää on vaikea esittää. Maailman terveysjärjestön määritelmän mukaan ”terveys on täydellinen fyysisen, psyykkisen ja sosiaalisen hyvinvoinnin tila eikä vain sairauden puutetta. (Wikipedia)
OOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
You may have heard the expression - "You are what you eat!" Well, you are certainly affected by the things you consume. The road to healthy kidneys starts with your diet. This is probably the single largest contributor to many kidney problems. (Kidney-facts)
You may have heard the expression - "You are what you eat!" Well, you are certainly affected by the things you consume. The road to healthy kidneys starts with your diet. This is probably the single largest contributor to many kidney problems. (Kidney-facts)
Her pee stick was +3 yesterday. Three days of +3 is another relapse. Felt like someone had kicked me in the stomach, I could hardly breathe all day. I couldn´t eat all day. I didn´t say anything to her, she just went to school. This morning the pee stick was +2. Halleluja and praise the something, there is still reason to fight! This means war.
So today she is staying at home, I´m wrapping her up in cotton wool. I am feeding her lemons, chaga mushrooms, turmeric and root vegetable stew, colloidal silver water, Regulat, kale, organic eggs scrambled in organic cold pressed sesame seed oil, nettle and calcium pills, vitamin d and lactic acid pills. And today she starts the week of 15mg of Prednisone. For good spirits and stress free atmosphere she got a new Monster High present and got sprayed with Rescue Remedy.
No I haven´t fallen off my trolley, haven´t gone completely mad. I don´t think any of these things will cure her or make the disease go away. But I am ready to try everything under the sun. So would you, if your child was sick. So don´t judge. I have read that people in the support groups have taken their NS kids to an exorcist. Compared to that, my chaga mushrooms pale in comparison. I love what one mum said in the support group: "If I thought standing in a bucket of jelly would help, I would do it." So would I.
I have received tons of info on kidney health, how to support your immune system whilst on steroids and a lot of tips on kidney friendly foods and other natural products that could MAYBE help.
I believe they will help her immune system get stronger, so that every sneeze won´t end in a relapse. I believe in maintaining a healthy, vitamin- and enzymefilled diet will improve her over all health. I believe she has suffered immensely from the strong drugs she is not used to taking and she needs help fighting all the nasty side effects from the steroids.
I have spent hours on the computer researching all these tips, so I wouldn´t go crazy with all this. But with the fear of a relapse, I ran straight to the health store. Lucky for me a dietary supplement specialist was working and we had a long chat, her giving me her opinions and recommending other stuff. I want to post about all these, but I don´t have the time for that now.
I need to vent out a little anger.
L´s doctor called because I had informed the hospital of the +3 yesterday. I told him I am keeping her home today and feeding her only healthy food. It must make a difference if she has pizza and coke or organic root vegetables, right? (Not that she ever has pizza and coke). Again we had the discussion about the diet. A lot of English and American parents keep their kids on a glutein free, low sodium diet and I am keeping her also on a dairy free diet due to the study, that stated it helped cause less relapses.
Our doctor said in plain words that THE DIET MAKES NO DIFFERENCE WHAT SO EVER!
Here I need to breathe and calm down.
Seriously? I would love to know what the doctor feeds his children if they were sick. I have been to DOCTORS who really recommend and emphasize the importance of a healthy diet. There are probably millions of articles on the internet written by DOCTORS about the importance of nutrition on health. There are countless studies of a spesific diet improving or curing various diseases. The NS parents and sufferers themselves have noticed an improvement with a healthy diet.
How our doctor can justify his opinion, I have no idea. I would like to ask, but I have better things to do than bang my head against the wall.
Okay, and say our doctor is plain stupid and believes this, could he have not said out of empathy something like: "That´s really nice that you keep her on a healthy diet." Or maybe: " That´s great, you should try everything that could maybe help." Or: " It must help you to be able to do something in helping her fight this."
But no. He thinks all is well with the tiny little magic pills. Well I have news for you doctor, the pills DON`T WORK! The pills cause her horrible side effects and are destroying her from within. But hey, no worries, there are more pills for the side effects right? ARGH!!!
It is really hard for me to respect a doctor who does not understand that a person´s well being and health is a puzzle of many parts. Nutrition and mental health are big parts of the puzzle. If she ends up relapsing, I want to change doctor´s.
Health is the level of functional or metabolic efficiency of a living being. In humans, it is the general condition of a person's mind, body and spirit, usually meaning to be free from illness, injury or pain (as in "good health" or "healthy"). The World Health Organization (WHO) defined health in its broader sense in 1946 as "a state of complete physical, mental, and social well-being and not merely the absence of disease or infirmity. (Wikipedia)
No I haven´t fallen off my trolley, haven´t gone completely mad. I don´t think any of these things will cure her or make the disease go away. But I am ready to try everything under the sun. So would you, if your child was sick. So don´t judge. I have read that people in the support groups have taken their NS kids to an exorcist. Compared to that, my chaga mushrooms pale in comparison. I love what one mum said in the support group: "If I thought standing in a bucket of jelly would help, I would do it." So would I.
I have received tons of info on kidney health, how to support your immune system whilst on steroids and a lot of tips on kidney friendly foods and other natural products that could MAYBE help.
I believe they will help her immune system get stronger, so that every sneeze won´t end in a relapse. I believe in maintaining a healthy, vitamin- and enzymefilled diet will improve her over all health. I believe she has suffered immensely from the strong drugs she is not used to taking and she needs help fighting all the nasty side effects from the steroids.
I have spent hours on the computer researching all these tips, so I wouldn´t go crazy with all this. But with the fear of a relapse, I ran straight to the health store. Lucky for me a dietary supplement specialist was working and we had a long chat, her giving me her opinions and recommending other stuff. I want to post about all these, but I don´t have the time for that now.
I need to vent out a little anger.
L´s doctor called because I had informed the hospital of the +3 yesterday. I told him I am keeping her home today and feeding her only healthy food. It must make a difference if she has pizza and coke or organic root vegetables, right? (Not that she ever has pizza and coke). Again we had the discussion about the diet. A lot of English and American parents keep their kids on a glutein free, low sodium diet and I am keeping her also on a dairy free diet due to the study, that stated it helped cause less relapses.
Our doctor said in plain words that THE DIET MAKES NO DIFFERENCE WHAT SO EVER!
Here I need to breathe and calm down.
Seriously? I would love to know what the doctor feeds his children if they were sick. I have been to DOCTORS who really recommend and emphasize the importance of a healthy diet. There are probably millions of articles on the internet written by DOCTORS about the importance of nutrition on health. There are countless studies of a spesific diet improving or curing various diseases. The NS parents and sufferers themselves have noticed an improvement with a healthy diet.
How our doctor can justify his opinion, I have no idea. I would like to ask, but I have better things to do than bang my head against the wall.
Okay, and say our doctor is plain stupid and believes this, could he have not said out of empathy something like: "That´s really nice that you keep her on a healthy diet." Or maybe: " That´s great, you should try everything that could maybe help." Or: " It must help you to be able to do something in helping her fight this."
But no. He thinks all is well with the tiny little magic pills. Well I have news for you doctor, the pills DON`T WORK! The pills cause her horrible side effects and are destroying her from within. But hey, no worries, there are more pills for the side effects right? ARGH!!!
It is really hard for me to respect a doctor who does not understand that a person´s well being and health is a puzzle of many parts. Nutrition and mental health are big parts of the puzzle. If she ends up relapsing, I want to change doctor´s.
Health is the level of functional or metabolic efficiency of a living being. In humans, it is the general condition of a person's mind, body and spirit, usually meaning to be free from illness, injury or pain (as in "good health" or "healthy"). The World Health Organization (WHO) defined health in its broader sense in 1946 as "a state of complete physical, mental, and social well-being and not merely the absence of disease or infirmity. (Wikipedia)
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